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Born This Way Opens Minds and Doors

June 17, 2018 493 Comments

There’s a driving purpose for the families who agreed to participate in the Emmy Winning Docu-Series Born This Way: to show parents with young children or a prenatal diagnosis of Down syndrome the possibilities for the future. With Megan’s keynote Speech, Don’t Limit Me, along with the risks the parent’s of Born this Way encourage their adults to take the show has inspired other families to remove limits and support their children’s and adult’s dreams. But the show has also inspired many typical people to also give people with Down syndrome a chance and remove the prejudices they previously held.

Born this Way first aired on December 8, 2015. I was curious about how introducing 7 adults with Down syndrome to the world, in the comfort of their living rooms would be changing perceptions and opening doors for others with Down syndrome.

Here’s what I found.

According to the Annual Disability Statistics Compendium there were 4 times the number of new jobs for people with disabilities in the US in 2016 vs 2015. 343,483 new jobs were filled by people with disabilities. If that’s not proof of stigmas and prejudices being removed, I don’t know what is. I can’t wait to see what the 2017 and 2018 numbers reveal.

Specifically for people with Down syndrome I’ve prepared a list of the firsts.

The first registered Capitol Hill lobbyist with Down syndrome, Kayla McKeon, 30, who works for the National Down Syndrome Society, has already helped achieve passage of the ABLE to Work Act. 2018.

For spring 2018 we found that Brooke Hebert joined the Alpha Sigma chapter of Phi Mu and became the very first Greek woman with Down Syndrome.

Jamie Brewer is one of our superstars and is paving the way for so many with Down syndrome. In February 2018 she became the first woman with DS to star in an Off-Broadway play, Amy and the Orphans, In June she was the first actor with Down syndrome to win a Drama Desk award and she won it for Outstanding Featured Actress in a Play.

Jamie's understudy, Edward Barbanell who you may remember from the movie, The Ringer is the first man to star in an Off-Broadway play they both are paving the way for future thespians in live theatre.

First person with Down syndrome to appear on “The View” was Mia Armstrong in May 2018.

The World’s First Ever Down syndrome improvisation troupe has been formed in Ohio.

First Gerber Spokesbaby Lucas Warren February, 2018. Gerber started the Spokesbaby program 91 years ago.

Blake Pyron of Blake’s Snow Shack –the First to open the New York Stock Exchange March 3, 2018. He was also the first person with DS to own his own business in Texas in 2016.

December 2016 John Cronin opened his business, John’s Crazy Socks. But that wasn’t the big first. A year later in 2017 when he announced the revenue for his first year in business was $1.4 million dollars. Now that is an impressive first.

In 2017 Hanna Atkinson and Connor Long became the first-ever people with IDD/DS to earn personal Emmys for their work as contributing broadcast news reporters. And in 2016 they became the first ever News Reporters with Down syndrome.

November, 2017 Mikayla Holgren became the first woman with DS to compete in a Miss USA State Pageant, where she was awarded the Spirit of Miss USA AND the Director’s Award. She then went on to win the very first ever Miss Congeniality at the Global Beauty Awards in Seattle in March 2018.

September 2017, Rachel Osterbach and John Tucker, of the Born this Way cast were the first people with DS to present at a televised awards show when they broke the glass ceiling and presented at the Creative Arts Emmy’s.

Andrew Harris climbed to the 13,776 foot summit of the Grand Tetons in August, 2017 with the help of future brother-in-law and Pro Skier Max Hammer.

Hallel Markowitz along with several other Israeli children with disabilities were the first models with disabilities for the Summer 2017 collection of Select Fashion, an Israeli children’s clothing brand.

Kennedy Garcia was the first model with DS for Justice in April 2017, but she had already achieved another first in 2015 being the first model with DS for American Girl.

In March 2017 Melanie Segard, a 21-year-old Frenchwoman fulfilled her dream by presenting the weather on TV National Public Channel France 2.

February 2017 Madeline Stuart launched her very own fashion label in New York’s Fashion week.

December 2016 Asher Nash became the first model with DS for OshKosh B’Gosh….after 120 years.

Isabella Springmuhlof Guatamala is the first fashion designer with Down Syndrome to show a collection at London Fashion Week in 2016.

Also in 2016 Chelsea Werner was the first model with DS to film a commercial for H&M.

Sam and Matty’s 2014 Kickstarter Campaign was a huge success and the resulting movie, Spring Break Massacre, debuted in 2016, the Zombie movie they had been talking about for years. Then they scored another big first when they appeared on the Conan O’Brien show in July 2016!

Born This Way was the first television show featuring a cast of people with Down syndrome to win an Emmy. Outstanding Unstructured Reality Program.

Even before Born this Way there were some pretty amazing firsts that happened too. To put this into perspective before Born this Way there were 25 Firsts spanning 29 years. Since Born this Way in just 2 years there have been 25 firsts.

Aubrey Lokelani McKenzie, Miss Hawaii Universal Princess United States 2015 & 2016.

After battling for years for the right to compete Garett “G-Money” Holeve finally realizes his dream of fighting in a sanctioned MMA Match in October 2015.

June 2015 Marcus Sikora published the first children's book written by a person with DS. Black Day: The Monster Rock Band.

Again breaking another barrier, Jamie Brewer, who is a television star in her own right as a cast member on American Horror Story debuted as the first Runway Model with DS in New York’s Fashion Week in February 2015 modeling an original design by Carrie Hammer.

December, 2014 Ezra Roy, 26 graduated Magna cum laude with a Bachelors degree in Fine Arts from TSU.

May 2013 Jimmy Jenson, 48, was the first man with Down syndrome to complete the New York Marathon in a little over eight hours, encouraging everyone he passed along the way to keep going.

In 2013, Angela Bachiller was elected as a city councillor in Valladolid, Spain.

Karen Gaffney was the first to receive an Honorary Doctorate degree from the University of Portland in May 2013. But she’s broken more records than that. Widely known for her 2001 completion or swimming a relay across the English Channel and her 2007 swim across Lake Tahoe.

In May 2013 Megan McCormick was the first person in the United States with Down Syndrome to graduate with honors from a technical college, Bluegrass Community and Technical College.

In May 2012 Tommy Jessop made history as the first person with Down syndrome to professionally play the title role of Hamlet in Blue Apple Theater's touring production.

March, 2012 Antoinette Mendoza, 45, completed the Los Angeles Marathon. The article says she’s one of the first two women to complete a marathon, but I can’t find an article about who the other one is.

Elisha “Eli” Reimer is the first to climb Mount Everest in March 2013.

Elad Gevandschnaider was the first person with DS to serve in the Israeli Army in 2012.

Yulissa Arescurenaga is the first certified Zumba instructor with Down Syndrome receiving her certificate in 2012.

2010 Tim Harris opened Tim’s Place in Albuquerque, New Mexico. (Tim is off to new adventures and may open another restaurant in the future.)

Chelsea Warner was the first person with DS to compete in USA GYMNASTICS in 2008.

April 2007 Simon Beresford was the first runner with DS to complete the London Marathon.

Sujeet Desai is an incredible musician who has mastered 7 instruments: Bb and bass clarinet, alto saxophone, violin, piano, trumpet and drums.

In 1996 Stephanie Ginnsz was the first person with DS to be featured as a lead actor in a movie, “Duo: The True Story of a Gifted Child with Down Syndrome.” And won the Best Film Award at the Academy Awards in the Student Category.

January 1996, Sandra Jensen was the first woman with DS to receive an organ transplant. Still today states deny organ transplants to people with DS and other intellectual disabilities and the NDSS is fighting for their rights to medical care.

In 1987 Judith Scott was introduced to Fiber Art and became famous for her sculptures. She was the first artist with Down syndrome whose art was featured in galleries, many galleries.

In 1994 Jason Kingsley and Mitchell Levitz published the first autobiographical book by adults with Down syndrome, “Count Us In.”

In 1989 Chris Burke became the first major character with DS on a prime time television show.

They say when you break a glass ceiling you will get slivers. There are critics of Born this Way and viral videos featuring people with DS. Vocal parents of children with Down syndrome who point out that those who are featured in the media don’t represent everyone with Down syndrome. And while each cast member has worked very hard to achieve their success, nothing came easy for any of them, and these critics take away all their hard work by sweeping it under the carpet and assuming their lives have been effortless.

I believe the point is missed when seeking to point out a person’s additional challenges– many on this list of firsts are non-verbal. And some also have the dual diagnosis of Autism. But we aren’t focusing on their additional diagnosis, we are instead focusing on their successes.

None of these people “lucked into” their firsts. For many years before their "first" they worked hard. Their families exposed them to their communities and encouraged them to follow their dreams. And their parents facilitated those dreams by showing them the steps they needed to take to succeed and helped them prepare for the opportunities.

Yes—there’s a couple of babies in this group—but they also didn’t luck into their firsts.

If Lucas’ mom had not taken the initiative to enter him into the Gerber Spokesbaby Contest he wouldn’t have had the opportunity to be selected. Was he the first baby with DS to ever be entered? Maybe, maybe not...but if she had not taken the initiative he wouldn’t have this honor.

Asher’s mom had to advocate when the modeling agency representing him didn’t even submit him for the OshKosh advertisement. But OshKosh couldn’t resist him after seeing how adorable and what a huge personality he has.

And their parents believed in them. Their parents never gave up when things were difficult, when behaviors reared their ugly heads and when people used that four-letter-word, “can’t,” they all said, “I’ll show you!” And that they did.

What barriers are left to be broken down? I know Sean aspires to be the first person with Down syndrome on the Ellen Show…but there are still so many more firsts to achieve.

It seems the American Dream is finally available to people with Down syndrome. List what’s left in the comments and let’s check those off and open doors for people with Down syndrome everywhere!

If I missed any firsts, my apologies and also please post them in the comments.

About the Author: Sandra McElwee is the author of three books, and the Chief Dream Facilitator for her son Sean who is a cast member of Born this Way, t-shirt designer (seanese.com) , trampoline park referee and a keynote speaker.

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